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Table 3 Characteristics of interviewed partners

From: User perspectives on a psychosocial blended support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: a qualitative study

 

Completers (n = 17)

Drop outs (n = 6)

Gender, n (%)

 Female

12 (70.6)

3 (50.0)

 Male

5 (29.4)

3 (50.0)

Age in years, mean (SD)

59.9 (10.9)

58.7 (13.4)

Education level, n (%)

 Low

1 (6.0)

–

 Medium

8 (47.0)

3 (50.0)

 High

8 (47.0)

3 (50.0)

Diagnosis partner, n (%)

 ALS

13 (76.5)

3 (50.0)

 PMA

4 (23.5)

3 (50.0)

Time since diagnosis in months, median (range)

33 (9–253)

35 (12–82)

Parameters patient

 ALSFRS-R, median (range)

25 (4–44)

24 (5–34)

 ALS-FTD-Q, median (range)

11 (0–38)

15.5 (8–33)

  1. Educational level: low = did not complete secondary school-completed low level secondary school; medium = completed medium level secondary school; high = completed upper level secondary school and/or university degree
  2. Abbreviations: ALS-FRS-R, Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised; ALS-FTD-Q, Amyotrophic Lateral Sclerosis-Fronto Temporal Dementia-Questionnaire