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Table 2 Demographic and clinical characteristics for youth with type 1 diabetes (N = 781) and parents (N = 826)

From: Diabetes MILES Youth–Australia: methods and sample characteristics of a national survey of the psychological aspects of living with type 1 diabetes in Australian youth and their parents

 

Youth (N = 781)

Parents (N = 826)

NDSS Registrants aged 10–19 years (N = 9856)a

Gender–female

474 (61)

727 (88)

4672 (47)

 Child’s gender–female

-

384 (47)

-

Age–years

14 ± 3

46 ± 6

16 ± 3

 Child’s age–years

 

14 ± 3

 

Youth/child’s age group–years

   

 10–12

230 (29)

285 (35)

2078 (21)

 13–15

277 (35)

292 (35)

2986 (30)

 16–17

153 (20)

155 (19)

2312 (23)

 18–19

121 (15)

94 (11)

2480 (25)

State/Territory

   

 New South Wales

211 (27)

205 (25)

2980 (30)

 Victoria

184 (24)

248 (30)

2512 (25)

 Queensland

182 (23)

162 (20)

2139 (22)

 Western Australia

87 (11)

92 (11)

985 (10)

 South Australia

68 (9)

70 (8)

743 (8)

 Tasmania

33 (4)

21 (2)

260 (3)

 Australian Capital Territory

15 (2)

23 (3)

179 (2)

 Northern Territory

1 (<1)

4 (<1)

58 (<1)

Geographical area

(N = 755)

(N = 810)

 

 Major cities

517 (68)

546 (67)

6692 (69)

 Inner regional

168 (22)

192 (24)

2188 (22)

 Outer regional & remote

70 (9)

72 (9)

876 (9)

Socio-economic status–IRSAD

(N = 754)

(N = 810)

 

 Low (1–3)

130 (17)

121 (15)

2210 (23)

 Medium (4–7)

284 (38)

319 (39)

4069 (42)

 High (8–10)

340 (45)

370 (46)

3468 (36)

Cultural/ethnic background

   

 Aboriginal or Torres Strait Islander

14 (2)

9 (1)

188 (2) (N = 8595)

 Country of birth–Australia

715 (92)

659 (80)

5447 (87) (N = 6280)

 Main language spoken at home–English

759 (97)

808 (98)

-

Child lives with

(N = 758)

-

-

 2 parents (biological or adoptive)

624 (82)

  

 2 parents–one a step-parent

50 (7)

  

 Single parent family

85 (11)

  

Youth/child’s diabetes

   

 Age at diagnosis (years)

9 ± 4

8 ± 4

9 ± 4

 Diabetes duration (years)

6 ± 4 (0–18)

6 ± 4 (0–16)

6 ± 4 (0–19)

 Treatment regimen–CSII

409 (52)

436 (53)

4084 (41)b

 Self-reported HbA1c–mmol/mol (%) (N = 650)

65 ± 18 (8.1 ± 1.6 %)

64 ± 16 (8.0 ± 1.4)

-

Occupation

(N = 773)

(N = 739)

-

 School student

676 (87)

0

 

 Tertiary student (university)

51 (6)

0

 

 Employed/self-employed, full/part time

22 (3)

570 (77)

 

 Apprenticeship or trade training

13 (2)

0

 

 Unemployed/Looking for work

11 (1)

22 (3)

 

 Homemaker/Carer/Volunteer

1 (<1)

130 (18)

 

 Other

11 (1)

17 (2)

 

Parents’ marital status

-

(N = 823)

-

 Married

 

651 (79)

 

 De facto (living together)

 

57 (7)

 

 Relationship (living apart)

 

9 (1)

 

 Single

 

11 (1)

 

 Separated/divorced

 

84 (10)

 

 Widowed

 

11 (1)

 

Parents’ highest level of education

-

(N = 740)

-

 ≤year 10

 

98 (13)

 

 Completed year 12

 

103 (14)

 

 Trade/diploma

 

222 (30)

 

 University

 

317 (43)

 

Annual household income ($)

-

(N = 711)

-

 Up to 20,000

 

14 (2)

 

 20,001–40,000

 

47 (7)

 

 40,001–60,000

 

66 (9)

 

 60,001–80,000

 

87 (12)

 

 80,001–100,000

 

126 (18)

 

 >100,001

 

264 (37)

 

 Prefer not to answer

 

107 (15)

 
  1. Unless otherwise stated, data are n (%) or mean ± SD (range)
  2. Total N reported in this table not always consistent with total sample size due to missing data on some items
  3. IRSAD Index of Relative Social Advantage and Disadvantage, CSII Continuous subcutaneous insulin infusion
  4. aTotal number of NDSS Registrants with type 1 diabetes aged 10–19 years at November 2014
  5. bAs at June 2014